About
Welcome! I started this site to be a source of inspiration and hope for those dealing with cystic fibrosis. When I was first dating my husband and found out that he had CF, I began researching the disease and was confronted with a dizzying amount of scary statistics and depressing stories. Everything I read described CF as ‘fatal’, ‘death sentence,’ ‘life shortening,’ … Needless to say, I was overwhelmed and quite upset.
As a graduate student in a medical field, I continued my research, hoping to better understand the disease. I began uncovering more and more facts about treatments and progress that amazed me. Despite the gloom-and-doom hype, within the science, I found hope.
My goal is to share that hope with everyone looking for information on CF. Yes, it is a scary disease. I’m not trying to downplay the severity or sugarcoat the facts. But I do want to highlight the reasons that we have to be hopeful. A positive attitude can only help us through the challenges of CF.
What you will find on this site
Some of the information that will be provided on this site:
- Updates on recent medical developments for CF treatments and medications
- Inspirational messages for managing your health
- Stories from real people with CF
Please read through the information on this site, and feel free to leave comments or contact me for more information. We’re happy to have you here!
