Exciting Success for CF Awareness
Previously I mentioned the importance of increasing awareness for CF with regards to politics. Since it is a fairly rare disease, it can be easy for patients with CF to be overlooked in the health care system and in political arenas that control funding for medical research. Well recently, the Senate officially recognized May 2008 as National Cystic Fibrosis Awareness Month.
It is very exciting to have CF be acknowledged this way. May has traditionally been a month for CF awareness because of Great Strides, the biggest fundraiser by the CFF, occurs in many cities through out the country during May. Being granted official recognition by Congress means that CF Awareness is in fact increasing, and that the government recognizes the importance of increasing education on the disease.
Adding in this new success of recognizing CF to all the recent advancements in medication and therapies, and the success of fundraising organizations like the CFF, I am excited and hopeful that great progress for cystic fibrosis will be in our future!
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Ashley 12.04.09 at 1:59 pm
I was very pleased when I discovered there would be an official CF awareness month, I have lost a dear friend to this disease and was very aggrevated that there was never anything before now to raise awareness. Thank you to everyone who made this happen, you have made a young woman very happy, and Im sure my dear friend is smiling down at us all. Bless you all and Im sure many other families and indivuiduals would agree.